A family is appealing for
urgent medical help for their son who suffers from a mega-rare condition which
has left him with a twisted neck and a 'wasted' body. Mahendra Ahirwar, 12,
from a village in India's Madhya Pradesh state ,suffers from a mystery
muscle-wasting disease, which has left him too frail to support his own body
parts.
The boy's extensor neck
muscles are unable to hold his head in place, meaning it constantly falls onto
his right shoulder or his chest. In addition, his limbs have lost almost all
muscle tissue, leaving him weighing just two-and-a-half stone.
Mahendra's parents say he
was born a healthy baby, but within three years of his birth he developed the
condition. They have been battling the condition for 9 years now, and no
specialist has been able to help. His mom wonders if it is only death that can
deliver him from this.
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